Adventure to Carmel

We just got back from our trip to the neurologist in Carmel (a northern suburb of Indianapolis). It was quite an “adventure.” We left the house in plenty of time but with an almost empty tank of gas and no real clue as to the exact location of the doctor’s office. The appointment was scheduled for 10a but we had arranged to meet my mother and Britta, my eldest niece, between 9:30a and 9:45a so that they could take the kids to a park while we were at the doctor’s office.

We got to the general vicinity in plenty of time but for the life of us could not locate the doctor’s office. We spent 40 minutes driving around looking for it and tried several times to reach the office by cell phone. There was a constant busy signal so we couldn’t get through. This whole time, the van was driving on fumes and I was anxious that we would be stuck by the side of the road somewhere. Plus, we were worried about my mother and Britta waiting for us, wondering where we were.

Sigh. Such is our life. We were quite stressed out by the time we were found by Britta, who guided us to the right location. We were told by the attendant that since we were a half hour late for our appointment, the doctor could only see Michele for a short time.

In spite of apprehension about going to all this trouble for nothing, we were pleased with the doctor’s visit. She seems to be genuinely concerned about Michele’s condition and asked lots of questions and did a quick examination.

One mystery that she cleared up for us related to our understanding from Michele’s regular doctor’s receptionist that the MRI showed nothing. Fact is, it confirmed what the CT scan showed, which was described as a dark or obscure area in Michele’s brain. I have no idea why we were told that the MRI showed nothing. The neurologist believes it is a cyst or dead area that Michele may have had since birth or at least, for a long time. She doesn’t feel it is dangerous. She didn’t rule out the possibility that it may be growing and may play a part, but she thinks it’s doubtful. It is located in the basal ganglia on the right side of Michele’s brain. She will monitor it over time.

The neurologist ordered some more blood tests and also scheduled a 48-hour in hospital test that is basically an EEG given over a long period of time, including during her sleep. She also scheduled Michele to be seen by a neuropsychologist since Michele mentioned some memory problems as one of the symptoms she’s experiencing. This person will help determine which area of the brain might be affected.

The upshot is that we do not have any significant answers yet, but we weren’t expecting to have any. The doctor told us that Michele’s symptoms could be caused by a wide variety of things, even something as weird as a particular kind of virus or an undiagnosed strep infection. We just have to wait and see what these further tests will tell us.

After the doctor visit, we met up again with my mother and Britta and went to a nearby park to have a picnic lunch. It was in a beautiful location overlooking a little stream in a wooded area. Britta is getting ready for her upcoming wedding in about a month. It was great to see them.

MRI results for Michele

A few minutes ago we learned that the MRI results from last Friday are negative. That is, nothing concrete showed up to explain the “dark or abnormal area” shown by the CT scan. This is good and bad. It is good because maybe it rules out something significantly wrong in Michele’s brain. It is bad because it leaves us uninformed, still, about the cause(s) of her condition. She and I have mixed feelings right now. Next up is her appointment on Tuesday with a neurologist.

How things are going

This weekend went fairly well for us. Michele’s dad arrived Saturday morning and he stayed outside with the kids most of the day while Michele’s mom helped with many other things. Over the last several days she kept things going around the house (dishes, cleaning, meals, etc.), or helped with the kids so that Michele could do things. Saturday I was able to make inroads into the laundry backlog. I was also able to clean our bedroom and do a few other things. The weather was beautiful: sunny, warm, and breezy. All of the kids developed sunburn but they thoroughly enjoyed playing outside. Keegan’s big thing right now is basketball, and since his Grandma bought him a new basketball, he’s been shooting hoops as much as possible. (He’s developed into a true blue Hoosier ;-) )

Everyone was pretty sad when Michele’s parents had to leave yesterday. They provided much-needed help at a critical time for us, sacrificing a lot to help us recover from a very difficult situation. We are so thankful for them and all they do for us.

My mother is planning to arrive this afternoon and we are looking forward to her being with us.

Michele is not doing well, still. We are waiting to hear the results of the MRI. I don’t expect an answer for another day or two, but maybe it’ll come sooner than that.

Yesterday I went to church by myself (again). The main focus was on the baptism of one of the attendees, and the whole ceremony/celebration was great. There was a potluck lunch after the service but I opted not to stay for that.

MRI experience

Michele had quite a time with her MRI this afternoon. She is claustrophobic and the idea of being put into what amounts to a metal coffin was pretty daunting for her. It didn’t help that the space was so narrow that with her hands clasped around her waist, she could lift her fingers and touch the ceiling of the tunnel. They also covered her face with some kind of mask. She had two scans, one of them with a special kind of dye injected into her system, and one without. We should have results from this sometime next week.

Michele having MRI this afternoon

In a little while, Michele and her mom will be leaving to go to the hospital for her MRI while I stay home with the kids. She is not doing very well in the sense of having a lot of anxiety about the outcome and struggling with her condition. She worries that this situation might be permanent. There are a lot of “What if” kinds of questions.

We really appreciate the many expressions of support and concern from family and friends.

News update re Michele

We just heard from Michele’s doctor that the CT Scan she had on Wednesday revealed something they term “a cloudy or abnormal area” in her brain. They emphasized that it wasn’t a tumor and that she shouldn’t be overly concerned. However, they are obviously concerned because they want her to have an MRI next week to help them understand what this area is and whether it might be a factor in her seizure-like symptoms. We’re still waiting on EEG results.

It’s a kind of no-win situation in that you hope they find something, but you also hope they don’t find anything. We’ll just have to wait and see, and trust in prayer and God’s help for her and for her doctors as they try to figure out what’s wrong.