Tag Archives: Wilson’s Disease

No answers, yet

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Michele writes the following about yesterday’s visit to the neurologist:

I went to the doctor today and there is not a lot of new information. My blood tests are elevated but only
slightly. This is good and bad, if they were drastically off then it would be clear what the problem is but because they are only slight it is hard to determine a specific cause.

The dr. ordered a Lyme Disease Titer and I had that drawn today so hopefully in a few days we will have a better idea if it is Lyme Disease.

The dr. feels that there is a possibilty that it is Wilson’s. She wants me to see an opthamologist to have a slit-lamp test (from searching the web, it looks like the regular eye exam light they use to check the interior of your eye, the thing you rest your chin in and press your forehead forward) to check for Kayser-Fleischer rings around my corneas. These are rusty brownish green deposits around the colored part of your eye that are indicators of Wilson’s Disease. As soon as I am able to get the tests done
we may be able to eliminate a few diseases!

So, no answers, yet, but we feel like we may know more soon.

Wilson’s Disease?

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Michele called her doctor back to ask for more specifics about the latest test results. She was told that her SED rate and urinary copper tests were elevated. She has had the SED rate test done a few times before, and each time, it was elevated. We still do not know what her doctor thinks is the diagnosis based on all of the tests, but Michele did some research on the Internet and found a condition called Wilson’s Disease that may be what our doctor is considering. We won’t know for sure, though, until she meets with her in person next week.